1 in a million will be diagnosed with an intramedullary spinal cord tumor. In November 2014, I joined this elite club. I underwent an 8-hour surgery and, because mine was in my thoracic region, I woke to find I had loss of mobility and feeling from my waist down. I had a lot to learn and re-learn. But with a dedicated team of doctors and therapists over the course of my first 9 months, I was able to walk again despite the painful neuropathy. I still cannot feel my husband’s hand on my knee, or my dog in my lap. But I have learned to be grateful they are here with me for this journey.
Since joining the club, I have met others with similar stories to tell. Only instead of a spinal cord tumor, they had brain tumors. Brain tumors are more common, but its hardly a consolation. With a brain tumor, you can lose your ability to talk. Just as with learning to walk again, learning to talk is a slow process met with many frustrations along the way. Not the least of which is connecting with others.
Something we have in common. In learning to walk again, to talk again, we also need to connect again.
So come walk with us. Talk with us. Connect with us. And support the work Courage Kenny Rehabilitation Institute does to help those of us walk and talk again. And connect again.
May 14. 2016 @ Excelsior Brewery, Downtown Excelsior, MN
Walk 3:00 - 4:00
Silent Auction, Food, Live Music 4:00-6:30